The Foundation of a Movement – Day 2 OCAM

WORD News, ovarian 0 Comments

Tomorrow, an otherwise normal Friday, is “Wear Teal Day” in honor of Ovarian Cancer Awareness Month. In homes, schools, workplaces and parks people will wear teal;  I don’t know about you, but teal is probably not my color, so wearing teal is never considered normal to me. However, I will wear teal; not because I look good in it, but because I believe in the cause it stands for:  OVARIAN CANCER.  I wear teal because I have met and watched people lose too many women whose lives were ripped apart by this cancer.  I wear teal because I want more women to know about ovarian cancer, and I want a CURE!

When people stand up by branding themselves with an otherwise nondescript blending of blue and green they are identifying with a cause for this one day.    Though they have taken some action; getting dressed is harder work for some than others, they have simply identified that they are aware that there is a cause known as ovarian cancer.  This is good, but we hope for more:  we hope they become part of a movement.  A movement brings together people of all walks of life to make a difference and bring about change.  A movement does not stop until the goal is accomplished.

A movement needs people to talk, stuff envelopes, make phone calls, writer letters, tell stories and so much more.

The “Wear Teal Day” is about more than just wearing a color that identifies with a cause, but rather it is one of the first steps to being involved in a movement that might save your mother, sister or daughter’s life.  As I think about the idea of this movement that I joined just  a few years ago, I am struck that this does not happen in a vacuum.  It takes multitudes of women, multitudes of men, and multitudes of groups and organizations focused on defeating ovarian cancer.

Over the last three years I have met so many amazing women and men who are leading this movement.  As I sit down today to try to understand some of these people, I have identified several of those leaders’ roles:

An advocate is one who is publicly urging, arguing, and compelling people to take notice of ovarian cancer.  They are willing to speak in public, to often shout (respectfully) and to make sure that every person hears about  the reality of ovarian cancer and the opportunity of hope. I have personally seen women and men speak in front of Congress, talk to large stadiums of people and not take a “no” from their local media outlet all to “get the WORD out” about ovarian cancer.

Read the rest of this entry »

Ovarian Cancer Awarenes Month Day 1

WORD News, ovarian 0 Comments

Welcome to Ovarian Cancer Awareness Month (OCAM).  Over the next thirty days we will post a minimum of thirty posts on the WORD blog.   Today’s post is understanding the basics of ovarian cancer through three perspectives:  Science, Numbers and Faces.

Just hearing the words “ovarian cancer” can be scary. We understand that. In fact, it’s the reason we are assembling our new comprehensive look at risk factors, symptoms, treatments and more. After all, if you or someone you love is going to fight ovarian cancer, the best thing you can arm yourself with is information.

Definition
Unfortunately, due to the fact that ovarian cancer is often diagnosed in its later stages, it causes more deaths than any other gynecologic cancer.  The good news is, when discovered early, it is highly curable.

Ovaries are located in the pelvis, one on each side of the uterus, or womb.  Ovaries make female hormones and produce eggs.  There are three types of ovarian cells from which cancers can form– epithelial, germ cell and stromal cell.  About 85 to 90 percent of ovarian cancers are epithelial ovarian cancers, which start on the surface of the ovaries. This is the type that we will discuss here.

Know the risk factors. Be aware of the signs and symptoms, which may lead to early diagnosis and a healthier life.

Read the rest of this entry »

“WORDs of Wisdom”

WORD News 0 Comments

Included here is one of the videos from our “WORDs of Wisdom” video series.

“WORDs of Wisdom” is a video series that features key experts from the field of medicine and research science to personally address questions and issues surrounding current gynecologic cancer trends.  In the video embedded below, Dr. Kelly Manahan explains the new HPV vaccine recommendations.  To view more of the “WORDs of Wisdom” video series, visit our “WORDs of Wisdom” YouTube playlist here.

“WORD on HPV – Behind The Scenes” Video Episode 1

WORD News 0 Comments

In the next couple of weeks, WORD will be releasing previews and “behind-the-scenes” interviews related to the production of WORD’s educational animated short story entitled, “WORD on HPV”. “WORD on HPV” is an educational film focused on raising awareness of HPV infection and prevention, and the relation of HPV to cervical cancer.
Included below is the first in a short series of “WORD on HPV – Behind The Scenes” videos. In this video, you will see a short :30 preview of the full animation piece, as well as some insight to the goals of the, “WORD on HPV” project.

Be sure to subscribe to our eNewsletter for information on how to see the full four minute version of the animation, and to learn more about “WORD on HPV” project.

“Let’s Talk”

WORD News 0 Comments


Hey, let’s talk…

I’m sure most of us would agree that the best ways to learn, become inspired, and see hope is through the stories of those who live with, through, and beyond cancer. In fact, this is one of the reasons WORD has become so dedicated to opening the “dialogue” between survivors, as well as between researchers and doctors.

Which brings me to the introduction of WORD’s new online video series of survivor stories called, “Let’s Talk”

“Let’s Talk” is a personal history series aimed at archiving the stories of women who have battled gynecologic cancer, and those who support them. The aim of this project is to use these stories to provide a real-world, person-to-person resource for others who wish to learn from these personal cancer experiences.

In an effort to make this a more complete resource though, we need to ask your help in acquiring additional gynecologic cancer survivor stories to further this project. Could you provide direction on how to connect with any local cervical, uterine, or ovarian cancer survivors who would be interested in recording their story? The average interview lasts about 10 minutes, and is then edited down to a 2-3 minute piece that will later be put on our YouTube site (www.youtube.com/wordoncancer).  And you can view our FAQ here.

If you have a contact who would be willing to have their survivor story video taped, please contact us at talk@wordoncancer.org.

To get a clearer idea of what we are looking for, please view Ellen’s story below.

A woman shouldn’t have to face the burden of cancer alone. So, WORD is searching for a way to create meaningful dialogue between women who have been touched by the disease… “Let’s Talk”

World Cancer Day 2010

Resources, WORD News 0 Comments

About three years ago I started working in cancer research and education with.  Until then I had never heard about WORLD CANCER DAY (by the way as I finish writing this it was yesterday  – February 4, 2010).   As I read the  Livestrong blog post about World Cancer Day – they said this year’s day was very timely because  cancer is “ set to become the #1 killer in the world this year, the day brings us together to highlight the growing personal and economic impact of the disease.”

This statistic frightens me.  With all the breakthrough in technology, all the medical advancements, and the new effective screenings and treatments, cancer death rates continue to  be on the rise worldwide.  This is NOT acceptable.  We can no longer sit by as  people die because they make lifestyle choices out of ignorance and/or ambivalence, they do not have access to proper prevention or treatment, and research is not effectively translated to treatment.

Women’s Oncology Research and Dialogue will continue look to remove the barriers that are keeping the death rate due to cancer rising.  Barriers of indifference.  Barriers of ignorance.  Barriers to new research for treatments.  However, as I saw many organization point out  – It doesn’t start with the important work of our organization’s work,  but with people making personal decision about their lifestyle and health care.  What can women (you) do?  Here are a few ideas –

  • Get to the doctor if you have a specific and recurrent change in your health
  • Stop Smoking
  • Get an annual exam/Pap Test
  • Stop Smoking
  • Eat Well
  • Exercise Regularly
  • Know the risks factors and symptoms of gynecologic cancers
  • Much more!

I am excited for WORD because in just a few months, we will launch a new website that we believe will be a catalyst and inspiration for many women to  learn to take these steps and many more.  My hope is that next year when World Cancer Day comes about, we can say full heartedly, “We did our part to lessen the impact cancer has around the world, one person at a time!”

Response to New Pap Test Recommendations

WORD News 0 Comments

On Nov. 20, 2009, the American College of Obstetricians and Gynecologists (ACOG) reported that less frequent Pap tests were recommended based on new studies. The release of these new guidelines has caused quite a stir among professionals and patients a like. To help clear up what these recommendations may mean for you, we asked WORD cofounder and Gynecologic Oncolgist at UTMC, Dr. Kelly Manahan to comment.

You can listen to her phone interview by watching the embedded video above, or you can download the audio only version of the interview, by right-clicking on the following link, and choosing to save to your computer.WORDs of Wisdom Podcast 012510

Happy Holidays from WORD!

WORD News 0 Comments

WORD would like to wish you “Happy Holidays” with our Video Christmas Card embedded below.  The holidays are a great time to pause and count your blessings.  And, as always, we here are at WORD are very thankful for your interest and support this past year.  We look forward to another great year together, in our fight against gynecologic cancers.

DC trip

WORD News 0 Comments

On Thursday November 5, WORD traveled to Washington, D.C.  WORD was honored to be an Advocacy Exhibitor at Saturday’s GCF’s “Gynecologic Cancer Awareness Movement Weekend” conference and Sunday’s “Race to End Women’s Cancer”.

On Saturday, WORD had the opportunity to setup a booth at the Mandarin Oriental Hotel, during the GCF “Gynecologic Cancer Awareness Movement Weekend” conference. We were thrilled to connect with both old and new friends and dialogue about what they were learning from the survivor courses.  We were reminded that in order to best educate the gynecologic cancer patients of tomorrow, we need to learn from and partner with the champion survivors of today.  We were inspired by every woman we met and encouraged to persevere by their friends and family who give support and provide hope.

Sunday was GCF’s Inaugural “Race to End Women’s Cancer”. What a great turnout! WORD was able to support those who participated in the Run/Walk and even record some of their stories for the “Let’s Talk” series we are currently working on. The race was a beautiful reminder that the battle to conquer gyncecologic cancer is indeed a global effort.

WORD Names Publicis Indianapolis As its Campaign Development Counsel

WORD News 0 Comments

WORD is proud is announce its new partnership with Publicis Indianapolis!

Media Contact:
Peter Agostinelli, Publicis
(317) 644-8116, peter.agostinelli@publicis-usa.com

FOR IMMEDIATE RELEASE

WORD Names Publicis Indianapolis
As its Campaign Development Counsel

INDIANAPOLIS, July 10, 2009 — Publicis Indianapolis announced today that Women’s Oncology Research and Development (WORD), a nonprofit organization that helps women defeat gynecological cancers, has selected Publicis to assist in the development of an educational outreach program.

After recently receiving funding from the Department of Defense for an educational media campaign, WORD will be able to help women in understanding, preventing and fighting gynecologic cancers. WORD is working in partnership with Publicis and Purdue University’s Regenstrief Center of Healthcare Engineering. The national campaign will reach out to women by providing the tools necessary to make informed health decisions.

“WORD is very passionate about educating and informing women about how they can prevent and conquer possible health risks,” said Dr. Linnemeier, one of WORD’s founders.  “We are excited to be partnering with Publicis to communicate our scientific and clinical research.”

“Publicis has great respect for WORD’s vision and commitment to educate women about potential cancer risks,” said Tom Hirschauer, president of Publicis Indianapolis. “We look forward to assisting this organization in building upon its goal.”

About WORD
WORD is a nonprofit organization that helps women defeat gynecological cancers through revolutionary scientific and clinical research. WORD was founded by Drs. Geisler, Linnemeier, and Manahan in November 2005.  Dr. Geisler specializes in obstetrics and gynecology and Dr. Linnemeier specializes in internal medicine. For more information, please go to www.wordoncancer.org.

About Publicis Indianapolis
Publicis Indianapolis is part of Publicis USA and Publicis Group, a unit of Publicis Worldwide, the original advertising network of Paris-based Publicis Groupe S.A., which is the world’s fourth largest communications group. For more information, please go to publicisindianapolis.com.

Note: This research and development program is made possible by a cooperative agreement that is awarded and administered by the U.S. Army Medical Research & Materiel Command (USAMRMC), and the Telemedicine & Advanced Technology Research Center (TATRC) under Contract Number: W81XWH-09-2-0015.

The Content of the information does not necessarily reflect the position or policy of the Government, and no official endorsement should be inferred. For purposes of this article information includes news releases, articles, manuscripts, brochures, advertisements, still and motion pictures, speeches, trade association proceedings, etc.

###


Copyright © 2007 . All rights reserved.